Privacy statement
Introduction
We recognise the trust you place in us and take our responsibility to protect your privacy seriously. This statement explains which personal data we collect and how we use it. We comply with applicable data protection legislation, including the General Data Protection Regulation (GDPR).
This privacy statement applies to the services of Stichting Overleven met Alvleesklierkanker, referred to below as “SOAK”. The foundation is registered with the Dutch Chamber of Commerce under number 64583325. SOAK is the data controller within the meaning of the GDPR.
SOAK is based in Leiden. Our donor administration is located at Bargelaan 200, 2333 CW Leiden, and can be contacted at info@supportcasper.nl.
SOAK is not responsible for the privacy practices of external websites or other third-party sources.
Contact details
Stichting Overleven met Alvleesklierkanker
Bargelaan 200
2333 CW Leiden
071-7601620
info@supportcasper.nl
Processing of personal data
The sections below explain which personal data SOAK processes. We collect no more personal data than is strictly necessary for the stated purpose.
Donors
You can donate in several ways, including through our website. Donations may be one-off or recurring by direct debit. We need certain personal data to process a donation. We process this information because it is necessary to fulfil the donation agreement between you and SOAK.
We process the following personal data for this purpose:
- First and last names
- Email address
- Address or location details
- Donation details
- Payment details, such as an IBAN or card details
Newsletter
You can subscribe to our quarterly newsletter through the website. It contains news about the foundation and current research. We process your details on the basis of your consent. You can unsubscribe using the link at the bottom of every newsletter or by emailing info@supportcasper.nl.
We process the following personal data for this purpose:
- First and last names
- Email address
Downloads
You can request brochures and other downloads through our website. We use the details below to send the requested material. By submitting the request, you consent to this processing.
We process the following personal data for this purpose:
- First and last names
- Email address
- School
Contact
We welcome questions, complaints and comments. You can contact us by email, social media, online form or telephone. We use the details below to respond properly. SOAK processes this information on the basis of its legitimate interest in dealing with your enquiry.
We process the following personal data for this purpose:
- First and last names
- Email address
- Company name
- Telephone number
- Any information you share with us
Events and fundraising
SOAK organises sporting events and information meetings and supports people who fundraise for Support Casper. We need personal data to register you for an event or help you organise and manage a fundraiser.
We process the following personal data for this purpose:
- First and last names
- Email address
- Telephone number (if completed)
- Fundraising details, such as the name of the fundraiser and its target
Purposes of processing personal data
We may record personal data when you visit our website, request information or a service, register with us or contact us by telephone. SOAK only processes the information needed for the relevant purpose.
The following purposes apply to the processing of personal data by SOAK:
- to contact you
- to send you information
- to enter into and fulfil donation and other agreements
- to meet legal obligations, including accounting and tax requirements, court orders and other binding laws and regulations
- to provide and improve the website and, where permitted, understand how visitors use it so that we can offer relevant information
We may also use personal data for relationship management, to grow and maintain our community of donors, volunteers and other supporters, and to keep you informed about our activities where we have a lawful basis to do so.
Storage period
SOAK does not retain personal data for longer than necessary. We delete relationship data once it is no longer needed. Some information must be kept to meet financial or tax obligations; in those cases, we retain it for seven years and delete it securely afterwards.
Cookies
This website uses cookies — small text files stored on your device — to help us understand how visitors use the site. Information generated by cookies may be transferred to SOAK's secure servers or those of a service provider. We use it to analyse website use and produce activity reports. When you first visit the website, you can choose your cookie preferences.
For information about cookies, please refer to our cookie policy.
Provision of personal data to third parties
SOAK may engage third parties to process data in accordance with this statement. These parties act as processors on SOAK's behalf. We require them to provide appropriate technical and organisational safeguards and enter into a data processing agreement under which they may process personal data only on SOAK's instructions. They may include:
- IT suppliers and service providers
- Software suppliers
- Payment service providers
- Event organisations and locations
- Consultants
Otherwise, SOAK shares personal data with third parties only with your prior consent, where required by law or legal proceedings, or where necessary to protect our legitimate interests.
To provide our services, SOAK may transfer personal data to organisations outside the European Economic Area (EEA). We do so only where an appropriate level of protection is in place, for example through European Commission standard contractual clauses or other suitable data protection arrangements.
Accessing, correcting or deleting your data
You may ask us to give you access to your personal data or to correct, complete, delete or restrict it. Email requests to info@supportcasper.nl.
When SOAK processes your personal data, you have the following rights:
- Right of access: the right to obtain a copy of the personal data SOAK processes about you;
- Right to rectification: the right to correct or complete inaccurate or incomplete personal data;
- Right to object: the right to object to the processing of your personal data;
- Right to erasure: the right to ask SOAK to delete your personal data;
- Right to data portability: the right to receive certain personal data in a standard digital format or have it transferred to another organisation;
- Right to restriction of processing: the right to ask SOAK to limit how it processes your personal data, temporarily or otherwise;
- Right to withdraw consent where SOAK relies on your consent to process personal data;
- Depending on the nature of the request, we may request additional identification.
SOAK will normally respond within one month. Depending on the nature and complexity of the request, this period may be extended by up to two months. If an extension is needed, SOAK will inform you within the first month.
If you wish to exercise any of these rights, you can contact us via info@supportcasper.nl.
Security
SOAK uses appropriate technical and organisational measures to protect personal data. Access is restricted to people who need the information for their work, systems are secured and safeguards are reviewed regularly. Measures include:
- Authorisation policy
- Two-factor authentication
- Encryption of digital files
- Physical measures for access security
- Up-to-date antivirus software
- Security of network connections via Transport Layer Security (TLS) technology
Dutch Data Protection Authority
If you believe that SOAK is not processing your personal data correctly, you have the right to lodge a complaint with the Dutch Data Protection Authority.
Automated decision-making
SOAK does not make decisions based solely on automated processing where those decisions could have significant consequences for an individual. In other words, we do not leave such decisions entirely to computer programs or systems without human involvement.
Changes to this privacy statement
SOAK may amend this privacy statement. Any changes will be published on the website. Please review this page periodically to stay informed.
This privacy statement was last updated on 27 July 2026.